Master of Science (M.S.)
Genetic Counseling
University of Maryland
1995
Barbara Harrison, M.S., CGC, is a clinical assistant professor in the Department of Pediatrics at the Howard University College of Medicine. She graduated with a bachelor’s degree in biology from University of Maryland, College Park and received a master’s degree in genetic counseling from University of Pittsburgh. She is certified by the American Board of Genetic Counselors and recently served on its Board of Directors. Harrison teaches graduate students, medical students, and medical residents in various specialties, in the areas of genetics, genetic testing, genetic counseling and ethics. In addition to her academic duties, she provides genetic counseling services at Howard University Hospital for a variety of referral reasons, including cancer and prenatal. She is the assistant director for community outreach and education for the Howard University Center for Sickle Cell Disease.
Professionally, Harrison serves on several advisory boards and is a collaborator on several projects. She is the chair of the Warren Alpert Foundation Alliance to Increase Diversity in Genetic Counseling Extremal Advisory Committee, and recently served on the All of Us Genetic Counseling Resource Advisory Board and the Alliance for Genetics and Genomics Diversity Advisory Group. In line with her passion to increase the diversity of genetic counselors, Harrison is a member of the Minority Genetics Professional Network, and co-founder of GOLDEN, the Genetics Opportunities, Learning, Development and Empowerment Network, which is dedicated to increasing the number of Black genetic counselors by raising awareness and mentoring prospective applicants. She was awarded the 2020 National Society of Genetic Counselors Natalie Weissberger Paul National Achievement Award, the society’s most distinguished honor.
In the community, Harrison volunteers with the Sickle Cell Association of the National Capital Area, Inc. and is an active member of Metropolitan Baptist Church in Largo, MD.
Genetic Counseling
University of Maryland
1995
General Biological Sciences/Genetics
University of Maryland
1993
Co-Principal Investigator: Implementation of a Questionnaire-Based Screening Protocol for Early Identification of FXTAS in At-Risk Populations, with Dr. Tamaro Hudson. 2026 – present.
Co-Principal Investigator: Optimizing Health Outcomes of Sickle Cell Disease Populations in Underserved Communities through Community-Based Participatory Research, $100,000 through Oct 2027, with Dr. James Taylor. 2026 – present.
Principal Investigator: Improving Access to Sickle Cell and other Hemoglobinopathy Carrier Screening to Facilitate Empowered and Informed Family Planning, funded by the Maryland Department of Health, $200,000, through July 2027. 2025 – present.
Co-Principal Investigator: Sickle Cell Wellness Center Community Outreach Plan, funded by the Government of the District of Columbia Department of Health, $50,000 through Sept 2026, In collaboration Dr. James Taylor. 2025 – present.
Co-Principal Investigator: An assessment of outcomes, satisfaction and perceived value of a mentoring program to support Black prospective genetic counselors (GC) and GC students. In collaboration with Grace-Ann Fasaye, previously funded by the New York Mid-Atlantic Caribbean Regional Genetics Network. 2023 – present.
Co-Investigator: Parental perspectives on newborn genomic research in a diverse population. In collaboration with Ingrid Holm, et al. at Boston Children's Hospital and Harvard Medical School, funded by the National Center for Advancing Translational Sciences. 2022 – 2026.
Most distinguished honor bestowed by the National Society of Genetic Counselors
Read: The Washington Informer | Howard University Sickle Cell Wellness Center
Read: The Washington Informer | From IV Lines and Hospital Tubing to Punchlines and International Stages
Read: AFRO | Addressing sickle cell disease: The importance of genetic counseling
Read: The GW Hatchet | Student groups to host sickle cell screening event for Rare Disease Day
Chapter 10: Health Disparities and Opportunities for Equity in Genetic Counseling in A Guide to Genetic Counseling, 3rd Edition (pp. 319-354)
Since 1998, A Guide to Genetic Counseling has served as the field’s seminal text both in the US and internationally, training generations of genetic counselors to serve patients and deliver high-quality guidance and care. Ongoing developments in the practice of genetic counseling and genetic testing play key roles in expanding the ways that genetic based care can support individuals and families as they make difficult and life altering decisions. This updated version reflects these changes and the increasing body of supporting research.
Chapter 11: Attitudes of Muslims Regarding the new Genetics: Testing, Treatment, and Technology in Genetics and Ethics in Health Care: New Questions in the Age of Genomic Health
This monograph explores current ethical challenges associated with advances in genetics technology and genomic health care from a wide cross-section of cultural, racial, religious, and technical perspectives.
Purpose
To address observed cancer health inequities resulting from historically-embedded structural bias in quality, equity, and access to health care delivery, we organized and coordinated Diversity, Equity, Inclusion, and Justice (DEIJ) Task Forces across three cancer centers in the Mid-Atlantic region.
It is essential that studies of genomic sequencing (GS) in newborns and children include individuals from under-represented racial and ethnic groups (URG) to ensure future applications are equitably implemented. We conducted interviews with parents from URG to better understand their perspectives on GS research, develop strategies to reduce barriers to enrollment, and facilitate research participation.
Ethnic diversity is not reflected within healthcare professions, including genetic counseling, where lack of growth and membership among minority colleagues extends to upper-level and executive roles. While diversity and inclusion-based topics have been emphasized, studies on potential barriers to career advancement in the field of genetic counseling have not received the same attention. Our study examined the current state of mentorship and sponsorship programs, the presence of diversity and inclusion initiatives, and opportunities for career advancement through the lens of a minority genetic counselor.
Prevalence of Sickle Cell Trait and Rare Hemoglobin Variants in the Metropolitan Washington DC Area
Letter to the Editor. Journal of Hematology 9(3):93-95
Sickle cell disease (SCD), a group of inherited disorders that affect hemoglobin (Hb), is the most common monogenic disorder and affects millions of people worldwide. In the USA, the number of people with SCD is about 100,000, and additional 3 million people carry sickle cell trait. The impact of hemoglobinopathies on healthcare is considerable and has great social and economic consequences.
Genetic counseling among minority populations in the era of precision medicine
Precision medicine includes the use of genetic variation to determine the prevention, pathology, management, and treatment of disease, which has the potential to significantly change the practice of healthcare. As such, its success depends on (a) having reliable information about the effects of genetic variation on disease processes; and (b) the patient's understanding of their own genetic makeup such that they can use that information to affect their lifestyle and diet. Given the history of low engagement of under-represented minority populations in both clinical genetic services and genetic research, both of these aspects will be challenged and must be addressed before the benefits of precision medicine will be fully realized. Reflecting on lessons learned in the field of cancer genetic counseling, we present key issues to consider as we look forward to providing genetic counseling to minority communities in the context of precision medicine.
Join Harold Fisher and his guest Barbara Harrison of the Howard University Center for Sickle Cell.